A note from Jordan on her son’s Hirschprung’s Disease:
“This is a rare condition that affects the large intestine, making it impossible to pass stool unassisted. Cedar has undergone 2 surgeries to correct his bowel problems and currently has another two more scheduled. He has a colostomy bag which is how he eliminates waste. Urostomies aren’t familiar territory for most of us, so we wanted to share his story and how our family operates differently because of it.
The colostomy bag has taken a lot of work to learn how to manage. We do quite a bit of laundry in our house because bags frequently bust on a roly poly baby. We spend a lot of time at doctor appointments to make sure Cedar’s development is on track as well as his health.
It also means a lot of uncertainty for our family. We never know if a bag is going to break in the middle of an outing or if the next procedure for Cedar will be a complete fix to his problem. Our family knows how to sit in uncertainty though and the adversity Cedar has faced in his short life encourages us and tests our faith and limits. The human body is an awesome resilient thing and the human spirit can handle just about anything. Our son has already taught us so many life lessons!!
Who knew pooping was so important?”